Assessment of quality of life related with health in the medicine

  • Received 08.12.2020

  • Revised 20.01.2021

  • Accepted 23.02.2021



  • 1,494 Views

  • Retrieved from Volume 3, No. 1, 2021

  • Pages 112-122

Summary. In recent decades, more and more attention has been paid in health practice to the assessment of "health-related quality of life" (HRQOL). The analysis of quality of life indicators allows us to assess not only the health and well-being of the population, but also the quality of medical care and rehabilitation of patients, their effectiveness, and the state of medicine in general. The aim of the study – to learn and analyze domestic and foreign literature sources on modern methods of assessing the quality of life of patients in medicine in the context of science. Materials and Methods. The search for literature that is freely available in printed publications was conducted in electronic libraries and information resources of the Internet, PubMed, Medline. From the 238 thematic articles found, 76 scientific publications were included in the literature review. Results. A review of data from the modern scientific medical literature on the study of quality of life in medicine for certain nosological forms of disease has been conducted. The most rational method of assessing the quality of life at the present stage is the use of standardized questionnaires in the study, which is necessary to obtain results that can be compared with each other, regardless of the country of research. Currently, a significant number of special descriptions are known. for nosologies such as diabetes, bronchial asthma, cancer, vascular pathology, etc. However, a significant part of them is under development and adaptations for different countries of the world. The process of cultural adaptation of questionnaires is extremely complex and requires close cooperation of international developers, translators, psychologists in order to use them in different ethnic and cultural and social groups. Conclusions. Thus, a review of the literature suggests that the concept of "quality of life associated with health" (HRQOL) and its study is a new modern methodology of health care. It allows to evaluate the results of patients' treatment, rehabilitation programs and medical and social adaptation of patients, complementing traditional methods, both at the individual and group levels

quality of life, quality of life related with health, HRQOL

https://doi.org/10.11603/bmbr.2706-6290.2021.1.11882

[1] Novik TI, Ionova TI. Guidelines for the Study of Quality of Life in Medicine. [Руководство по исследованию каче-ства жизни в медицине] Moscow: RAMS; 2012. Russian.

[2] Novik  AA,  Matveev  SA,  Ionova  TI. [Assessment of  the  patient's  quality  of  life  in  medicine].  Klinicheskaya meditsina. 2000;2: 10-3. Russian.

[3] Rasskazova YeI. [Methods for diagnosing the quality of life in the human sciences]. Vestn. Mosk. Ue-ta. Ser.14. Psikhologiya. 2012;3: 95-07. Russian.

[4] Schalok RL. The concept of quality of life: what we know  and  do  not  know.  J.  of  Intellectual  Disability  Res. 2004;48(3): 203-16. Available from: http://dx.doi.org/10.1111/j.1365-2788.2003.00558.x [Accessed March 2004].

[5] Engel  GE.  The  clinical  application  of  the biopsychosocial model. Am. J.Psychiatry. 1980;137(5): 535-43. Available from: http://dx.doi.org/ 10.1176 / ajp.137.5.535 [Accessed May 1980]

[6] McSweeny  AJ,  Grant  I,  Heaton  RK,  Adams  KM, Timms RM. Life quality of patients with chronic obstructive pulmonary  disease.  Arch  Intern  Med.  1982;142(3): 473-8  Available from:    http://dx.doi.org/10.1001/archinte.1982.00340160057014 [Accessed March 1982]

[7] Wenger  NK,  Mattson  ME,  Furberg  CD,  Elinson  J. Assessment of quality of life in clinical trials of cardiovascular therapies.  Am.  J.Cardiol.  1984;54(7):  908-13.  Available from: http://dx.doi.org/10.1016/s0002-9149(84)80232-5 [Accessed July 1984]

[8] Malykhin  FT.  [Quality  of  life  due  to  the  state  of health  of  elderly  and  senile  persons].  Kachestvennaya klinicheskaya praktika. 2011;1: 11-8. Russian.

[9] Basskin LE. Practical Pharmacoeconomics: How to design, perform and analyze outcomes research. Cleveland: Advanstar Communication; 1998.

[10] Kuapdykov  YeK, Abdrakhmanov  ZhS.  [Quality  of life  as  one  of  the  informative  methods  for  assessing  the patient's condition]. Valeologiya. 2010;3: 9-12. Russian

[11] Quality   of   life.   Medical   Encyclopedia. Shicago;1995.774 р.

[12] Johnes PW. Quality of life measurement the value of standartization. Eur Resp Rev. 1997;7(42): 42-9.

[13] Karimi M, Brazier J, Health, health-related quality of life, and quality of life: What is the difference? Pharmacoeconomics. 2016;34(7): 645-9. Available from: http://dx.doi.org/ 10.1007/s40273-016-0389-9 [Accessed July 2016].

[14] World  Health  Organization.  The  World  Health Organization  Quality  of  Life  assessment  (WHOQOL): position paper from the World Health Organization. Soc Sci Med. 1995;41(10): 1403-9.

[15] Karimi M, Brazier J. Health, Health-related quality of life, and quality of life: What is the difference? Pharmaco Economics. 2016;34(7): 645-9. Available from: http://dx.doi.org/ 10.1007/s40273-016-0389-9 [Accessed July 2016].

[16] Adeeva  TN,  Tikhonova  IV,  Khazova  SA.  [Life trajectories of adults with disabilities: theory and practice of research].  Peterburgskiy  psikhologicheskiy  zhurnal.  2017;4: 25-44. Russian

[17] Surmach MYu. [Health-related quality of life as a subject of study in the sociology of medicine]. Sotsiologiya. 2011;2: 100-4. Russian.

[18] Spiridonov  SP.  [Life  quality  indicators  and methodologies for their formation]. Voprosy sovremennoy nauki i praktiki. 2010;10-12 (31): 208-23. Russian

[19] Afanaseva  YeV.  [Assessment  of  health-related quality of life]. Kachestvennaya klin. praktika. 2010;1: 36-8. Russian.

[20] Vasserman LI, Trifonova YeA, Fedorova VL. [Internal picture of the disease in the structure of the quality of life in patients with somatic pathology]. Sibirskiy psikhologicheskiy zhurnal. 2008;27: 67-71. Russian.

[21] Novik  AA,  Ionova  TI,  Kishtovich  AV.  [General questionnaire of the study of the quality of life of the 2nd generation NJQoL-29]. Vestnik mezhnatsionalnogo tsentra issledovaniya kachestva zhizni. 2007;9-10: 25-31. Russian.

[22] Savchenko TN, Golovina GM. Subjective quality of life: approaches, assessment methods, applied research. [Субъективное качество жизни: подходы, методы оценки,  прикладные  исследования].  Moscow:  Publishing house "Institute of Psychology RAS"; 2006. Russian.

[23] WHOQOL  Croup.  Whoch  Quality  of  life?  World Health Forum. 1996;17(4): 354-6.

[24] Guryleva  ME,  Zhuravleva  MV,  Aleeva  GN. [Quality of life criteria in medicine and cardiology]. Russkiy meditsinskiy zhurnal. 2006;10: 761-3. Russian

[25] Yevdokimov  VI.  [Scientific  and  methodological problems of assessing the quality of life]. Vestnik psikhiatrii. 2008;27: 102-31. Russian.

[26] Ware  JE, Gandek B. Methods  for  testing  data quality,  scaling assumptions  and  reliability:  he  IQOLA Project  Approach.  J.  Clin.  Epidemiol.  1998;51(11):  945-52.  Available  from:  http://dx.doi.org/  10.1016/s0895-4356(98)00085-7 [Accessed November 1998].

[27] Makai P, Brouwer WBF, Koopmanschap MA, Stolk EA, Nieboer  AP.  Quality  of  life  instruments  for  economic evaluations  in  health  and  social  care  for  older  people: A systematic review.Soc. Sci Med. 2014;102: 83-93. Available from:  http://dx.doi.org/  10.1016/j.socscimed.2013.11.050 [Accessed 2014].

[28] Moroz IN. [Health-related quality of life assessment tools]. Voennaya meditsina. 2019;4: 78-85. Russian.

[29] Yevsina  OV.  [Quality  of  life  in  medicine  is  an important  indicator  of  a  patient's  health].  Elektronnyy nauchnyy  zhurnal  «Lichnost  v  menyayushchemsya  mire: zdorove, adaptatsiya, razvitie». 2013;1: 119-33. Russian.

[30] Sosnowski R, Kulpa M, Ziętalewicz U, Wolski1 JK, Nowakowski R, Bakuła R, et al. Basic issues concerning health-related  quality  of  life.  Cent  European  J  Urol. 2017;70: 206-11. Available from: http://dx.doi.org/ 10.5173/ceju.2017.923 [Accessed 2017].

[31] PROQOLID,  the  Patient-Reported  Outcome  and Quality Of Life [Electronic resource]. 2001-2014. Available from: http://www.proqolid.org.

[32] Zoloev GK, Vasilchenko YeM. [Research on quality of life in clinical practice]. Meditsina v Kuzbasse. 2004;1: 41-4. Russian.

[33] Yin  S,  Njai  R,  Barker  L,  Siegel  PZ,  Liao  Y. Summarizing  health-related  quality  of  life  (HRQOL): development and testing of a one-factor model. Population Health Metrics. 2016;14 (22): 22-30. Available from: http://dx.doi.org/ 10.1186/s12963-016-0091-3 [Accessed 2016].

[34] Novik AA, Ionova TI. Guidelines for the Study of Quality of Life in Medicine. [Руководство по исследова-нию качества жизни в медицине] Saint Petersburg: Neva. OLMA-PRESS Star World; 2002. Russian.

[35] Eurohis. Development of a generic health survey toolkit.  [Разработка  общего  инструментария  для  опроса о состоянии здоровья] Moscow: Human rights; 2005. Russian.

[36] Mihaila  V,  Enachescu  D,  Davila С. General Population  Norms  for  Romania  using  the  Short  Form  36 Health Survey (SF-36). QL News Letter. 2001; 26:17-8.

[37] Makarova UI, Yagudina RI. [Metology for calculating QALY in pharmacoeconomic modeling: using questionnaires for studying the patient's quality of life]. Farmakoekonomika, teoriya i praktika. 2018;1(6): 7-12. Russian. Available from: http://dx.doi.org/ 10.30809/phe.1.2018.1 [Accessed 2018].

[38] Ilic I, Milic I, Arandelovic M. Assessment quality of life: current approaches. Acta Medica Medianae. 2010;49(4): 52-60.

[39] Sirgy MJ, Michalos AC, Ferris AL, Richard A, Easterlin RA, Patrick D, et al. The quality of life (QOL) research movement: Past, present and future. Social Indicators Res. 2006;76 (3): 343-466. Available from: http://dx.doi.org/10.1007 / s11205-005-2877-8 [Accessed March 2006].

[40] Vlasov VV. The effectiveness of diagnostic tests. [Эффективность    диагностических    исследований] Moscow: Medicine; 2001. Russian.

[41] Zvyagina NM, Kudrenko SS, Antonov OV. [Quality of  life  as  a  criterion  for  assessing  the  effectiveness  of treatment and rehabilitation programs]. Journal of Siberian Medical Sciences. 2015;6: 30-6. Russian.

[42] Jenkinson С, Coulter A,  Wright L. Short form 36 (SF-36) health survey questionnaire: normative data for adults of working age. BMJ. 1993;306(6890): 1437-40. Available from:   http://dx.doi.org/10.1136 /   bmj.306.6890.1437 [Accessed 1993].

[43] Cella DF. Quality of Life: concepts and definition. J. Pain Symptom Manage.1994; 9 (3):186-92. Available from: http://dx.doi.org/10.1016/0885-3924(94)90129-5 [Accessed March 1994].

[44] Eurohis:  Development  of  a  common  toolkit  for  a health survey. [Разработка общего инструментария для опроса  о  состоянии  здоровья]  Мoscow:  Human  rights; 2005. Russian.

[45] Gote  SV,  Konstantinov  VK.  [Methods  for assessing the quality of life of living organ donors]. Vestnik transplantologii  i  iskusstvennykh  organov.  2017;1:82-8. Russian. Available from: http://dx.doi.org/ 10.15825/1995-1191-2017-1-82-88 [Accessed 2017].

[46] Parolin  MB,  Lazzaretti  CT,  Lima  JH,  Freitas AC, Matias JE, Coelho JC. Donor quality of life after living donor liver transplantation. Transplant. Proc.2004;4(36): 912-13. Available   from:   http://dx.doi.org/10.1016/j.transproceed [Accessed May 2004].

[47] Yevsina  OV.  [Quality  of  life  in  medicine  is  an important indicator of a patient's health status]. Lichnost v menyayushchemsya  mire:  zdorove,  adaptatsiya,  razvitie. 2013;1: 119-33. Russian.

[48] Zholdasbekova  AS,  Kalmataeva  ZhA.  [Modern approaches to the study of the quality of life in medicine and cardiology]. Vestnik KazNMU. 2016;3: 1-6. Russian.

[49] Haverman L, van Rossum MAJ, van Veenendaal M, van den Berg M, Dolman KM, Swart J, et al. Effectiveness of  a  Web-Based  Application  to  Monitor  Health-Related Quality of Life. Pediatrics. 2013;131(2): е533-е43. Available from:  http://dx.doi.org/10.1542/peds.2012-0958  [Accessed February 2013].

[50] Ferreira LN, Ferreira PL, Pereira LN. Comparing the performance of the SF-6D and the EQ-5D in different patient groups. Acta Med. Port. 2014;27(2): 236-45. Available from: http://dx.doi.org/  10.20344/amp.4057  [Accessed  February 2014].

[51] EQ-5D. Electronic resource [Электронный ресурс]. Available from: https://euroqol.org/ [Accessed 20.01.2021].

[52] Assessment of quality of life. Electronic resource [Элетронный  ресурс]. Available  from:  http://aqol.com.au/ [Accessed 20.01.2021].

[53] Komelyagina YeYu, Antsiferov  MB,  Uvarova  OM. [Russian-language  version  of  the  questionnaire  for assessing  the  quality  of  life  of  patients  with  peripheral polyneuropathy:  validation  and  application  prospects]. Sakharnyy  diabet.  2014;17(2):  56-65.  Russian.  Available from: http://dx.doi.org/10.14341/DM2014256-65 [Accessed February 2017].

[54] Measuring  and  valuing  health.  The  University Of  Sheffield.  Electronic  resource  [Элетронный  ресурс]. Available from: https://ugc.futurelearn.com/uploads/files/58/b4/58b44004-14ce-45eb-886c-db5fa958ae5/Measuring_and_Valuing_Health_Useful_Terminology.pdf.

[55] Huber MB, Felix J, Vogelmann M, Leidl R. Health-Related Quality of Life of the General German Population in 2015: Results from the EQ-5D-5L. Int J Environ Res Public Health.  2017;14(4):  426-37.  Available  from:  http://dx.doi.org/10.3390/ijerph14040426 [Accessed April 2017].

[56] Golicki D, Niewada M. EQ-5D-5L Polish population norms. Arch Med Sci. 2017;13(1): 191-200. Available from: http://dx.doi.org/10.5114/aoms.2015.52126  [Accessed January 2017].

[57] Mujica-Mota  RE,  Roberts  M,  Abel  G,  Elliott  M, Lyratzopoulos  G,  Roland  M,  et  al.  Common  patterns  of morbidity  and  multi-morbidity  and  their  impact  on  health-related quality of life: evidence from a national survey. Qual Life Res. 2015;24: 909-18. Available from: http://dx.doi.org/ 10.1007/s11136-014-0820-7 [Accessed 2015].

[58] Sukhonos YuA. Features of the population study of  the  quality  of  life.  [Особенности  популяционного  исследования качества жизни].  Saint  Petersburg.2003;13 Available  from:  http://www/dissercat.com/content/osoben-nosti-populya tsionnogo-issledovaniya-kachestva-zhizni. [Accessed 19.01.2021].

[59] Baker  F,  Intagliata  J.  Quality  of  life  in  the evaluation  of  community  support  systems.  Evaluat  Progr Plann. 1982;5(1):  69-79. Available  from:  http://dx.doi.org/ 10.1016/0149-7189(82)90059-3 [Accessed January 1982].

[60] Skevinkton SM, Wright A. Changes in quality of life of patients receiving antidepressant medication in primary care:  validation  of  the  WHOQOL-100.  The  British  J.  of Psychiatry. 2001;178: 261-7.

[61] SF-36 Health survey. Health assessments lab, medical outcomes trust and quality metric incorporated. 2006.

[62] Shipova NS. [Application of the methodology "Brief WHO questionnaire for assessing the quality of life" in the study of persons with disabilities] Vestnik KGU.2018;4: 250-5. Russian

[63] Ware  JE,  Sherbour  CD. The  MOS  36-item  short form  health  survey:  Conceptual  framework  and  item selection. Medical Care. 1992;30(6): 473-83.

[64] Campolina  AG,  Ciconelli  RM.  SF-36  and  the development  of  new  assessment  tools  for  quality  of  life. Acta Reumatol Port. 2008;33(2): 127-33.

[65] Shostak NA, Klimenko AA, Shemenkova VS, Svet AV. [The use of the SF-36 questionnaire in assessing the quality of life in patients with chronic thromboembolic pulmonary hypertension]. Klinitsist. 2017; 3-4(11): 44-9. Available from: http://dx.doi.org/  10.17650/1818-8338-2017-11-3-4-44-49 [Accessed November 2017]. Russian.

[66] Ware JE. Measuring patients’ views: the optimum outcome  measure.  SF  36:  a  valid,  reliable  assessment of health from the patient’s point of view. BMJ. 1993; 306 (6890): 1429-30. Available from: http://dx.doi.org/ 10.1136/bmj.306.6890.1429 [Accessed 1993].

[67] Lins L, Carvalho FM. SF-36 total score as a single measure  of  health-related  quality  of  life:  Scoping  review. SAGE Open Medicine. 2016;4: 1-12. Available from: http://dx.doi.org/ 10.1177/2050312116671725 [Accessed 2016].

[68] Amirdzhanova VN, Goryachev DV, Korshunov NI, Rebrov AP, Sorotskaya VN. [Population indicators of quality of  life  according  to  the  SF-36  questionnaire].  Nauchno-prakticheskaya revmatologiya. 2008;1(46): 36-48. Available from:   http://dx.doi.org/   10.14412/1995-4484-2008-852 [Accessed 2008]. Russian.

[69] Pelle AJ, Kupper N, Mols F, de Jonge P. What is the use? Application of the short form (SF) questionnaires for the evaluation of treatment effects. Qual Life Res. 2013;22(6): 1225-30. Available from: http://dx.doi.org/ 10.1007/s11136-012-0266-8 [Accessed June 2013].

[70] Instructions for processing data obtained using the SF-36 questionnaire. [Инструкция по обработке данных, полученных  с  помощью  опросника  SF-36].  Available from: http://bono-esse.ru/blizzard/RPP/sf36.pdf. Russian.

[71] Skevington SM, Lotfy M, O’Connell KA. The World Health  Organization’s  WHOQOL-BREF  quality  of  life assessment:  Psychometric  properties  and  results  of  the international field trial A Report from the WHOQOL Group. Quality  of  Life  Res.  2004;13(2):  299-310. Available  from: http://dx.doi.org/  10.1023/B:QURE.0000018486.91360.00 [Accessed February 2004].

[72] Burkovskiy  GV,  Kabanov  MM,  Kotsyubinskiy AP, Levchenko YeV, Lomachenkov AS. The use of the quality of life questionnaire (WHO version) in psychiatric practice: A  guide  for  doctors  and  psychologists.  [Использование опросника  качества  жизни  (версия  ВОЗ)  в  психиатри-ческой  практике:  Пособие  для  врачей  и  психологов] Saint Petersburg; 1998. Russian.

[73] Ferreira LN, Ferreira PL, Pereira LN. Comparing the performance of the SF-6D and the EQ-5D in different patient  groups.  Acta  Med.  Port.  2014;  27(2):  236-45. Available  from:  http://dx.doi.org/  10.20344/amp.4057.79 [Accessed February 2014].

[74] EQ-5D [Electronic resource]. Available from: https://euroqol.org/ [Accessed 03.01.2021]

[75] Khabibullina AR, Aleksandrova YeA. [Methodology for assessing health-related quality of life using the EQ-5D-3L questionnaire]. Rossiyskiy meditsinskiy zhurnal. 2019;4(25): 202-9. Available from: http://dx.doi.org/ 10.18821/0869-2106-2019-25-4-202-209 [Accessed 2019]. Russian.

[76] Amirdzhanova  VN,  Erdes  ShF.  [Validation  of  the Russian version of the general questionnaire EuroQol-5D (EQ-5D)].  Nauchno-prakticheskaya  revmatologiya.  2007;3(45): 69-76. Available from: http://dx.doi.org/10.14412/1995-4484-2007-691 [Accessed 2007]. Russian.